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July 23, 2020July 23, 2020

Study Links Structural Changes in Brain to Behavioral Problems in PWS Patients

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Structural changes in a brain region called the cerebellum are associated with behavioral problems in people with Prader-Willi syndrome (PWS), according to a study in Japan. The findings provided, for ... Read more

July 21, 2020July 21, 2020

Non-invasive Method Could Help Detect Low-grade Inflammation, Study Suggests

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Measuring how electricity moves through the body could help detect low-grade inflammation in adults with Prader-Willi syndrome (PWS) without the need for a blood sample, a new study suggests. ... Read more

July 16, 2020July 16, 2020

PWS Patients With Chromosome 15 Deletions More Prone to Obesity, Study Contends

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Children with Prader-Willi syndrome (PWS) whose disease is caused by a deletion in part of chromosome 15 may be more prone to obesity than others with non-deletion disease causes, ... Read more

July 14, 2020July 14, 2020

High Protein Meals Boost GLP-1 Hormone Known to Suppress Appetite in PWS Children, Study Finds

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High protein meals induce the secretion of the insulin-stimulating hormone glucagon-like peptide 1 (GLP-1) in children with Prader-Willi syndrome (PWS), suggesting that these kinds of meals may help suppress ... Read more

July 10, 2020July 10, 2020

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

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The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure the full implications, economic and social, of living with rare disease ... Read more

July 9, 2020July 9, 2020

Gene’s Loss Linked to Sleep and Food Irregularities in PWS Mouse Model

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Loss of the paternal copy of Snord116, a gene associated with Prader-Willi syndrome (PWS), causes alterations in sleep and feeding responses in a mouse model of the disease, a ... Read more

July 7, 2020July 7, 2020

Dietary Planning Helps Maintain Normal Fat Tissue Levels in PWS Children

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Regular adherence to a careful dietary plan can help children with Prader-Willi syndrome (PWS) maintain a normal amount of visceral adipose tissue, the fatty tissue around abdominal organs, a study reported. The ... Read more

July 2, 2020July 2, 2020

Growth Hormone Use Beyond Childhood Aids Young Adults With PWS, Study Finds

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Growth hormone treatment given for years in childhood and then either restarted or continued as patients reach adult height shows sustained positive effects on body composition among young adults with ... Read more

June 25, 2020June 25, 2020

Study Links Inflammatory Molecules to Behavior Problems in PWS Children

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Children with Prader-Willi syndrome (PWS) have abnormally high blood levels of certain inflammatory molecules, which is significantly associated with behavioral traits and symptoms of the condition, a recent study ... Read more

June 23, 2020June 23, 2020

Improved Height, Body Composition Found in PWS Patients Treated With Growth Hormone

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Growth hormone therapy improves height and body composition while lowering body mass index (BMI) in people with Prader-Willi syndrome (PWS), according to a review of clinical trials. The study, “Growth hormone ... Read more

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