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November 19, 2019November 19, 2019

FDA Grants Fast Track Designation to PWS Potential Therapy LV-101

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The U.S. Food and Drug Administration (FDA) has granted fast track designation to LV-101 (intranasal carbetocin), a treatment candidate for people with Prader-Willi syndrome (PWS). This designation is granted ... Read more

November 14, 2019

Rare Disease Film Festival Highlights Patient and Researcher Unity

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Rare disease-themed videos glowed on a large screen before an audience of people in wheelchairs, with crutches, and bearing oxygen tanks this Nov. 9 and 10 in San Francisco. ... Read more

November 14, 2019

Phase 2b/3 Trial of Livoletide Completes Enrollment of PWS Patients Ages 8 to 65

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A Phase 2b/3 clinical trial of livoletide, a treatment candidate for excessive eating in people with Prader-Willi syndrome (PWS), has completed recruitment of participants who are 8 to 65 ... Read more

November 12, 2019November 12, 2019

Obesity and Bone Fractures in Children with PWS Tied to High Blood Levels of Protein, Study Says

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Children with Prader-Willi syndrome (PWS) have high levels of a protein called LIGHT/TNFSF14, which may contribute to obesity and low bone mineral density (BMD), a study suggests. The research, ... Read more

November 7, 2019November 7, 2019

Daily Probiotic Reduces Abdominal Fat and Insulin Resistance in Children with PWS, Study Finds

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Daily consumption of a common probiotic significantly lowered the percentage of abdominal fat, improved insulin resistance, and reduced social withdrawal in patients with Prader-Willi syndrome, a study has found. ... Read more

November 5, 2019November 5, 2019

Long-term Growth Hormone Treatment Not Linked with Increased Severity of Scoliosis in Children with PWS, Study Finds

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Treatment with growth hormone for eight years led to a lower spine curvature in children with Prader-Willi syndrome (PWS) who developed scoliosis, a preliminary Dutch study reports. The research, “Effects ... Read more

October 31, 2019October 31, 2019

Home-based Exercise Improves Physical Activity in Women with PWS, Study Determines

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Supervised exercise sessions at home are an effective strategy to improve the levels of physical activity and walking capacity among women with Prader-Willi syndrome (PWS), a new study suggests. ... Read more

October 29, 2019October 29, 2019

Gut Microbiome May Protect PWS Patients from Insulin Resistance, Study Suggests

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The gut microbiome — the microbial community in the gut — of people with Prader-Willi syndrome (PWS) is more diverse than those of individuals with common obesity, and it ... Read more

October 24, 2019October 24, 2019

PWS Patients Struggle with Certain Aspects of Social Cognition, Study Finds

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People with Prader-Willi syndrome (PWS) have difficulty recognizing negative emotions throughout their lives, often confusing sadness with anger, a study reports. In addition, they have trouble understanding the sincere ... Read more

October 22, 2019October 22, 2019

Caregivers of Young PWS Children Experience Poor Quality of Life, Need Additional Support, Study Says

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Caregivers of young children with Prader-Willi syndrome (PWS) report low quality of life, highlighting the need for additional support systems for these families, a new Chinese study has found. ... Read more

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