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April 23, 2019April 23, 2019

At-Home Dialysis Can Manage Kidney Disease in Prader-Willi Patients, Case Report Shows

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Peritoneal dialysis (PD), a blood filtration procedure that can be done at home, has been used successfully over a long period to manage kidney failure caused by diabetes in ... Read more

April 18, 2019April 18, 2019

Study Outlines Rare Case of PWS Patient with Ear Canal and Bone Infection

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A new study described a rare case of a young man with Prader-Willi syndrome (PWS) with an invasive infection of the ear canal and the skull base who was ... Read more

April 16, 2019April 16, 2019

Report Details Use of Denosumab to Treat Osteoporosis in PWS Patient

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A case report suggested that treatment with denosumab (commercial names: Prolia, Xgeva) could be effective for patients with Prader-Willi syndrome (PWS), osteoporosis, and a history of fractures. The case was reported ... Read more

April 11, 2019April 11, 2019

UConn, Foundation for Prader-Willi Research Create Stem Cell Biobank

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UConn Health and the Foundation for Prader-Willi Research (FPWR) announced the creation of a centralized biobank to provide researchers worldwide with high-quality, validated stem cells for in-depth studies about ... Read more

April 9, 2019April 9, 2019

New Blood Test May Help Diagnose Prader-Willi Syndrome, Other Complex Disorders

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A new blood test called EpiSign may help identify complex and hard-to-diagnose genomic imprinting disorders such as Prader-Willi syndrome (PWS). EpiSign, available in two versions, can diagnose 19 complex disorders. This newly available ... Read more

April 2, 2019April 2, 2019

Cactus Extract Reduces Appetite in PWS Mouse Model, Study Reports

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Treatment with an Indian cactus extract reduces appetite in a mouse model of Prader-Willi syndrome (PWS) by interfering with a serotonin receptor in the animal’s brain, a study reports. The ... Read more

March 28, 2019March 28, 2019

Ghrelin Receptor Agonist May Improve Survival of Infants with PWS, Mouse Study Suggests

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A compound that could mimic ghrelin hormone activity and trigger its receptor signals could hold therapeutic potential to improve survival of patients with Prader-Willi syndrome (PWS) in early infancy, ... Read more

March 26, 2019March 26, 2019

Millendo Starts Phase 2b/3 Study Evaluating Livoletide as PWS Treatment

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Millendo Therapeutics has launched a Phase 2b/3 clinical trial investigating the safety and efficacy of livoletide (AZP-531) in patients with Prader-Willi syndrome (PWS), the company announced. The rare genetic ... Read more

March 21, 2019March 21, 2019

Board Recommends Continuation of Phase 3 Trial of Soleno’s DCCR Treatment for PWS

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The Data Safety Monitoring Board recommended the continuation of Soleno Therapeutics’ Phase 3 clinical trial evaluating the effects of diazoxide choline controlled release (DCCR) treatment in children and adults ... Read more

March 19, 2019March 19, 2019

Zafgen Suspends Plan to Initiate ZGN-1258 Program as Treatment for PWS

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Preclinical studies on the long-term impact of the investigational therapy ZGN-1258, being developed as a potential therapy for Prader-Willi syndrome (PWS), revealed alarming toxicity events and safety issues, Zafgen, ... Read more

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