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November 5, 2019November 5, 2019

Long-term Growth Hormone Treatment Not Linked with Increased Severity of Scoliosis in Children with PWS, Study Finds

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Treatment with growth hormone for eight years led to a lower spine curvature in children with Prader-Willi syndrome (PWS) who developed scoliosis, a preliminary Dutch study reports. The research, “Effects ... Read more

October 31, 2019October 31, 2019

Home-based Exercise Improves Physical Activity in Women with PWS, Study Determines

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Supervised exercise sessions at home are an effective strategy to improve the levels of physical activity and walking capacity among women with Prader-Willi syndrome (PWS), a new study suggests. ... Read more

October 29, 2019October 29, 2019

Gut Microbiome May Protect PWS Patients from Insulin Resistance, Study Suggests

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The gut microbiome — the microbial community in the gut — of people with Prader-Willi syndrome (PWS) is more diverse than those of individuals with common obesity, and it ... Read more

October 24, 2019October 24, 2019

PWS Patients Struggle with Certain Aspects of Social Cognition, Study Finds

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People with Prader-Willi syndrome (PWS) have difficulty recognizing negative emotions throughout their lives, often confusing sadness with anger, a study reports. In addition, they have trouble understanding the sincere ... Read more

October 22, 2019October 22, 2019

Caregivers of Young PWS Children Experience Poor Quality of Life, Need Additional Support, Study Says

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Caregivers of young children with Prader-Willi syndrome (PWS) report low quality of life, highlighting the need for additional support systems for these families, a new Chinese study has found. ... Read more

October 17, 2019October 17, 2019

Eutropin Produces Similar Benefits as Genotropin in Infants with PWS, Study Says

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Recombinant growth hormones Eutropin and Genotropin were found to produce similar improvements in growth, body fat composition, and motor and cognitive development in infants with Prader-Willi syndrome (PWS), a study ... Read more

October 15, 2019October 15, 2019

Birth of Children with PWS Not Related to Seasonal Factors, Study Finds

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The birth of children in the U.S. with Prader-Willi syndrome (PWS) — a rare disease caused by deletions in the chromosome 15q11-q13 region of the father — does not ... Read more

October 10, 2019October 10, 2019

Research Supported by PWS Foundation to Examine Cause of Behavioral Problems, Possible Treatment

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A grant winner’s research may help to advance a possible treatment of behavioral problems like temper outbursts in Prader-Willi syndrome patients. The treatment, an approved medication but not for ... Read more

October 8, 2019October 8, 2019

For Second Time, DSMB Recommends Continuation of Soleno’s DESTINY PWS Trial

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The Data Safety Monitoring Board (DSMB) has recommended, for the second time, the continuation of Soleno Therapeutics’ Phase 3 DESTINY PWS clinical trial evaluating the effects of diazoxide choline ... Read more

October 3, 2019October 3, 2019

Specific National Code for PWS Expected to Facilitate Research, Improve Patient Care

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Prader-Willi syndrome (PWS) has been given its own unique code by the National Center for Health Statistics (NCHS), which will make it easier to track accurate data on medical ... Read more

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