News

January 22, 2019January 22, 2019

Parents of PWS Children Give Telehealth Training Positive Reviews

News

A six-week remote parent-training intervention for children with Prader-Willi syndrome (PWS) got good acceptability and satisfaction scores from parents, supporting the use of telehealth to manage the social and ... Read more

January 17, 2019January 17, 2019

Inhibition, Working Memory Impaired in PWS Patients, Study Finds

News

Impairments in behavioral and working memory tasks are seen in people with Prader-Willi syndrome (PWS) compared with healthy controls, a new study shows. The study, “Investigation of the relationship ... Read more

January 15, 2019January 15, 2019

New Book Written by Mother of Child with PWS Offers Fresh Perspective on Special-needs Children

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Liza Zickefoose has six children. As if that’s not challenging enough, one of them, Bridgette Nicole Johnston, has Prader-Willi syndrome (PWS). But from Zickefoose’s perspective, her daughter has a ... Read more

January 10, 2019January 10, 2019

Study Determines Key Perinatal Features Suggestive of Prader-Willi Syndrome

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Neonatal hypotonia (low muscle tone), reduced fetal movement, feeding difficulties, and cryptorchidism (undescended testes) should immediately suggest a diagnosis of Prader-Willi syndrome (PWS), according to a recent study. “Neonatal Features ... Read more

January 8, 2019January 8, 2019

Phase 2a Study of Tesomet Complete; Open Label Extension to Follow

News

Saniona announced it has completed the second part of its exploratory Phase 2a study testing Tesomet (tesofensine/metoprolol) as a therapy for Prader-Willi syndrome, involving nine adolescent patients treated for three months. ... Read more

January 8, 2019January 8, 2019

Phase 3 Trial of Potential Prader-Willi Treatment LV-101 Enrolling Participants

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A Phase 3 trial of Levo Therapeutics‘ treatment candidate LV-101 (intranasal carbetocin) is enrolling participants ages 7-18 with Prader-Willi syndrome. Patients are being recruited at the University of Florida and ... Read more

December 21, 2018January 8, 2019

Rising Healthcare Costs Strain EU Budgets Even as New Therapies Flourish

News, Recently Published

Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures — at exactly the same time as the promise of new but expensive therapies to ... Read more

December 17, 2018

FDA Grants Orphan Drug Status to Auris’ Intranasal Betahistine for Treatment of PWS-linked Obesity

News

The U.S. Food and Drug Administration has granted an orphan drug designation to Auris Medical for its intranasal betahistine product for the treatment of obesity associated with Prader-Willi syndrome. ... Read more

December 10, 2018

Aripiprazole Resolves Psychosis Symptoms in Adolescent with Prader-Willi, Case Report Shows

News

Aripiprazole, a medication used to treat the symptoms of schizophrenia and other psychotic disorders, is a potential therapeutic option for patients with Prader-Willi syndrome and psychosis, a new case report ... Read more

December 3, 2018

DCCR Tablets Reduce Body Fat in Prader-Willi Patients, Phase 2 Trial Shows

News

Treatment with Soleno Therapeutics’ diazoxide choline controlled release (DCCR) tablets reduced excessive appetite and lowered body fat in Prader-Willi syndrome (PWS) patients in a Phase 2 trial, the company announced. ... Read more

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