Prader-Willi syndrome (PWS) Awareness Month happens every May to celebrate the global PWS community and call attention to…
Articles by Mary Chapman
The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person…
The Foundation for Prader-Willi Research (FPWR) is presenting Harvesting Hope for PWS, a virtual “turkey trot” distance challenge to…
At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases…
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes…
Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual…
A new video series from Saniona is highlighting the impact, on patients and caregivers, of Prader-Willi syndrome (PWS)…
From joining a mixology course to participating in fundraiser bingo, supporters globally are set to mark Prader-Willi Syndrome Awareness…
Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1,…
Scores of virtual events are afoot around the world to mark Rare Disease Day 2021 on Feb. 28. The…