Working closely with caregivers and clinical experts, an international team of scientists has adapted an eye-tracking test to more objectively measure the intense, constant hunger — called hyperphagia — that affects people with Prader-Willi syndrome (PWS). “By integrating stakeholder insights, we enhanced feasibility, accessibility and data quality,” demonstrating “the…
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Few things scare a parent more than the possibility of their child becoming mentally ill. If there is a history of mental illness in the family, an observant parent will be worried and watchful for signs. When our son, Robert, was born with Prader-Willi syndrome 35 years ago, we…
The Christmas season has always been my favorite time of year. I treasure memories of going to the homes of my grandparents and great-grandparents, large family gatherings, the big “box bash” on Christmas Eve, the smell of freshly baked treats, and anticipating the day I could move up to the…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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