The holidays can add an extra layer of stress to life with Prader-Willi syndrome. Routines and consistency are important, as they can help to reduce anxiety and prevent meltdowns. But during the holidays, routines change, and many of us gather with friends and relatives. The children or young adults…
The injectable therapy setmelanotide, being developed by Rhythm Pharmaceuticals for Prader-Willi syndrome (PWS), curbs hyperphagia, or uncontrollable hunger, and reduces body weight in children and adults with obesity due to PWS. Those are the early findings of an exploratory Phase 2 clinical trial, ongoing at a single U.S.
Working closely with caregivers and clinical experts, an international team of scientists has adapted an eye-tracking test to more objectively measure the intense, constant hunger — called hyperphagia — that affects people with Prader-Willi syndrome (PWS). “By integrating stakeholder insights, we enhanced feasibility, accessibility and data quality,” demonstrating “the…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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