While progress was made last year on newborn screening and other policy issues critical to rare disease patients, a “…
Articles by Mary Chapman
Caring for a loved one with a rare disease, especially during these uncertain times, demands significant time, attention, patience, and…
Butterflies, ballerinas, and abstract flowers are featured among the winning artwork of this year’s Rare Artist contest, hosted by…
The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to…
The annual EURORDIS Photo Award contest is inviting people worldwide to visually express what life is like with a…
To empower and equip members of the rare disease community to engage state leaders in matters of importance to patients…
A photo of a bespectacled young boy, his red baseball cap slightly askew as he  enjoys time outside, will be…
Same But Different, a nonprofit U.K. group that uses art for social change, is inviting people to choose their…
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
To raise awareness of the rare disease communities and celebrate the creativity of its members, the EveryLife Foundation for…