PWSA USA’s Angel Drive Fund-raising Campaign Kicks Off on Nov. 1
The Prader-Willi Syndrome Association (PWSA) USA announced that this year’s Angel Drive donation campaign — supporting the nonprofit in assisting those with this complex genetic disorder, and in advocating and funding research — will start on Nov. 1.
With chapters in most U.S. states, PWSA USA is the only national organization providing the comprehensive support, tools, and resources that people with Prader-Willi syndrome (PWS) and their families “need to thrive in the face of a rare genetic condition,” the association stated in its announcement.
More than 2,000 patients and families turn to PWSA USA for help every year, the organization noted, and the support provided would not be possible without the generous donations from the community.
“We are 100% community supported, so when generous friends like you make your year-end tax-deductible donations, you help to make even more possible for individuals with PWS, their families, and caregivers,” the association stated in the campaign’s website.
Much like PWS patients, no two snowflakes are the same, the association states, inviting everyone to color a snowflake and email it to [email protected] by Dec. 31. The two winners, who will be given a gift card, will be announced on Jan. 7, 2022.
Funds raised during the campaign will help the PWS community through direct support to those in need, and by advocating and funding research to improve the lives of those affected by PWS.
PWSA USA’s advocacy plans for next year include a meeting with legislators to address critical needs — such as recognizing PWS as a qualifying condition in many more U.S. states — and calling for treatments tackling the most challenging aspects of PWS.
The association also plans to provide free innovative and immersive educational resources on PWS-related sleep disorders to parents, caregivers, and healthcare professionals, as well as a “how to” school success toolkit directed to parents and educators.
A new volunteer leadership council program is expected to be launched next year, along with additional grants to support research applicable to daily living with PWS.
“Thank you for your kindness and generosity and for inspiring hope this holiday season!,” said Paige Rivard, the PWSA USA’s CEO and the mother of Jake, an 11-year-old with PWS.