An international survey found that clinicians with the most experience caring for infants with Prader-Willi syndrome (PWS) are more likely to forgo a sleep study before starting growth hormone therapy — contrary to current guidelines. For U.S. doctors, the most commonly cited reason was avoiding a delay in treatment…
Discussion
National Coming Out Day was observed Oct. 11, marking the anniversary of the 1987 National March on Washington for Lesbian and Gay Rights. The day encourages LGBTQ+ people to live openly and authentically, builds solidarity between the community and its allies, and highlights how much personal stories do to…
Discussion
Testosterone replacement therapy (TRT) may help preserve bone health and improve body composition in boys and young men with Prader-Willi syndrome (PWS), without worsening challenging behaviors in most cases, according to a study in the Netherlands. Although TRT has raised concerns about worsening behavioral problems in males with PWS, more…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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