How do you get away when you’re the caregiver of a medically complex child? Between appointments, medications, school, and the constant responsibility of keeping your child safe, a simple overnight trip can feel impossible. Caregiving often leaves little room for rest, connection, or spontaneity, and couples may find themselves…
Discussion
A structured interdisciplinary inpatient program for adolescents and young adults with Prader-Willi syndrome (PWS) and severe behavioral problems was associated with behavioral, functional, and metabolic improvements, a small study found. The study included nine participants who underwent an inpatient program combining behavioral therapy, supervised nutrition, rehabilitation, and psychiatric care.
Discussion
We spent time with family last week for my brother’s wedding, and got to hear someone say something we’ve heard, and said ourselves, many times about how content and relaxed both of our kiddos, Emerson and Ellis, seem. “We always said that since Emerson has always been such a good…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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