Caregiving for someone with Prader-Willi syndrome (PWS) is a role that often requires extraordinary commitment, consistency, and compassion. Much of this work happens quietly, behind the scenes, and without recognition. Yet it is some of the most important work that gets done each day. When I think about…
Typically developing siblings of children with Prader-Willi syndrome (PWS) often report feeling misunderstood and isolated, a new review highlights. The results underscore that PWS care needs to support not only the child with the condition and their parent(s), but also the entire family system. “Family context shapes sibling experiences…
Aardvark Therapeutics has provided new details on the safety concerns that led to the pause of a global clinical trial of ARD-101, its experimental treatment for hyperphagia, or persistent, insatiable hunger, in people with Prader-Willi syndrome (PWS). In a company press release announcing financial results and the…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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