Nearly 400 civic, business, and philanthropic leaders in South Florida gathered this week for a second annual event aimed at raising funds to support people with Prader-Willi syndrome (PWS) and other developmental disorders, particularly as they “transition into adulthood.” The fundraising gala was hosted by the Supreme Twins…
Discussion
Over the last few months, my husband, Jamie, and I have been preparing for our 1-year-old son, Ellis, to undergo surgery. Experts have found that cryptorchidism, or the absence of at least one testicle from the scrotum, occurs in 86% to 100% of boys with Prader-Willi syndrome (PWS).
Discussion
Five years of growth hormone (GH) treatment allows children with Prader-Willi syndrome (PWS) who are experiencing failure to thrive at the start of treatment to develop similar height-adjusted lean body mass, or non-fat tissue, to those without failure to thrive at GH initiation. That’s according to a study in…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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