Vienna to Host RARE2019 Meeting on Rare Diseases
About 100 scientists, researchers, pharmaceutical executives, and others will converge on Austria’s capital city early next month for the 2nd International Congress on Advanced ... Read more
Updates
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3-month Training Program Improves Hand Function in PWS Patients, Study Reports
A low-intensity training program improved hand function in adults with Prader-Willi syndrome (PWS), according to results of a pilot study in six patients. The ... Read more -
Patients, Family and Friends to Take Part in Variety of Rare Disease Day Events Worldwide
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about rare diseases and the millions ... Read more -
Food-related Behavior in PWS May be Linked to Neurological Response
Involuntary reflexes such as being startled are abnormal in Prader-Willi Syndrome (PWS) patients, and lower startle response to food images may explain their eating ... Read more
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Disgusting Food Scenes Evoke Abnormal Brain Responses in Patients with Prader-Willi Syndrome, Study Reports
Disgusting food scenes failed to activate primitive limbic structures in the brains of people ... -
Adults with Prader-Willi Syndrome Show Prematurely Aged Brains, Study Shows
Adults with Prader-Willi syndrome (PWS) show prematurely aged brains, being on average 8.74 years ... -
ICD-10 Codes, ‘Really Important’ to Rare Disease Patients, Soon Up for Fresh Consideration
G71.01 is, literally, the code for Duchenne muscular dystrophy. Q93.51 stands for Angelman syndrome, and G40.419 ... -
Nonprofit ausEE Promoting Feeding Tube Awareness Week in Australia
Feeding Tube Awareness Week (FTAW) — taking place Feb. 3-9 — is held worldwide ... -
Wearable Sensors Show Motor Differences Between Kids with PWS, Down Syndrome
Wearable sensors to detect movement showed differences in motor abilities in children with Prader-Willi ... -
Parents of PWS Children Give Telehealth Training Positive Reviews
A six-week remote parent-training intervention for children with Prader-Willi syndrome (PWS) got good acceptability ...
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Lean Muscle Mass Factors Strongly in Bone Health, Study Using Prader Willi Patients as Model Finds
News
Lean muscle mass is a strong predictor of bone mineral density, or bone health, research that used Prader-Willi syndrome (PWS) as a genetic model to determine which factors influence such density reports. In fact, lean mass was found to ... Read more