Having predictable rules and routines around food is not only a useful management tool for people with Prader-Willi syndrome (PWS) but also absolutely central to managing hyperphagia, a hallmark symptom of the disease characterized by uncontrollable hunger…
Discussion
Lately, our world has been a little chaotic. We’ve been traveling a lot, hosting family and friends, and I recently returned to work after paternity leave. Our 1-year-old son, Ellis, has started early intervention preschool half the week and daycare at my office the other half. We’re working on getting…
Discussion
The U.S. Food and Drug Administration (FDA) has lifted the hold on late-stage clinical testing of ARD-101, an investigational oral therapy for people with Prader-Willi syndrome (PWS) and hyperphagia, an insatiable feeling of hunger. “We are pleased that the FDA has lifted the clinical hold on ARD-101, allowing…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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