The first day of my master’s degree program in healthcare, I looked around the room and did the math: physician, more physicians, hospital administrator, physician. And then there was me, a mom whose medical training came from eight years of specialist appointments, insurance appeals, and late-night research after my son’s…
Discussion
Having predictable rules and routines around food is not only a useful management tool for people with Prader-Willi syndrome (PWS) but also absolutely central to managing hyperphagia, a hallmark symptom of the disease characterized by uncontrollable hunger…
Discussion
Lately, our world has been a little chaotic. We’ve been traveling a lot, hosting family and friends, and I recently returned to work after paternity leave. Our 1-year-old son, Ellis, has started early intervention preschool half the week and daycare at my office the other half. We’re working on getting…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
Get regular updates to your inbox.
