Testosterone replacement therapy (TRT) may help preserve bone health and improve body composition in boys and young men with Prader-Willi syndrome (PWS), without worsening challenging behaviors in most cases, according to a study in the Netherlands. Although TRT has raised concerns about worsening behavioral problems in males with PWS, more…
Discussion
I’m happy to report that surgery for our 1-year-old son, Ellis, went about as well as we could have hoped. Going in, we were told it could be the first of many, depending on what the surgeon found. Instead, the doctor was able to do everything needed in one go,…
Discussion
How do you get away when you’re the caregiver of a medically complex child? Between appointments, medications, school, and the constant responsibility of keeping your child safe, a simple overnight trip can feel impossible. Caregiving often leaves little room for rest, connection, or spontaneity, and couples may find themselves…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
Get regular updates to your inbox.
