Updates

September 22, 2020September 22, 2020
Low Thyroid Hormone Thyroxine Levels in PWS Children Increase With Age

Japanese infants with Prader-Willi syndrome (PWS) have lower levels of the thyroid hormone thyroxine compared with healthy infants, according to a new study. However, ... Read more
September 17, 2020September 17, 2020
Lallemand, PWSA Become Running Partners to Support Fundraiser

Lallemand Health Solutions has partnered with the Prader-Willi Syndrome Association (PWSA) to support Running for Research, an initiative to raise funds for PWS research at ... Read more
September 15, 2020September 15, 2020
Inversago Raises $35M to Develop Therapies for PWS, Other Disorders

Inversago Pharma has obtained $35 million in financing to advance the development of therapies for disorders such as Prader-Willi syndrome (PWS). The investment will support ... Read more
September 10, 2020September 10, 2020
Researchers Detail PWS Prenatal Diagnosis Based on Noninvasive Test

Researchers in Russia have published the first detailed description of a prenatal Prader-Willi syndrome (PWS) diagnosis based on the results of a noninvasive genetic ... Read more
September 8, 2020September 8, 2020
At-home Exercise May Improve Bone Health in PWS Children, Trial Shows

An exercise intervention program can improve bone health in children with Prader-Willi syndrome (PWS) and potentially lower the risk of osteoporosis later in life, a six-month ... Read more

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October 25, 2018October 26, 2018

Lean Muscle Mass Factors Strongly in Bone Health, Study Using Prader Willi Patients as Model Finds

News

Lean muscle mass is a strong predictor of bone mineral density, or bone health, research that used Prader-Willi syndrome (PWS) as a genetic model to determine which factors influence such density reports. In fact, lean mass was found to ... Read more

Updates

Low Thyroid Hormone Thyroxine Levels in PWS Children Increase With Age

Lallemand, PWSA Become Running Partners to Support Fundraiser

Inversago Raises $35M to Develop Therapies for PWS, Other Disorders

Researchers Detail PWS Prenatal Diagnosis Based on Noninvasive Test

At-home Exercise May Improve Bone Health in PWS Children, Trial Shows

Gut Microbiome Differences in PWS Children Possibly Linked With Their Overeating, Study Suggests

Same But Different Photo Contest Celebrates People With Rare Diseases

FPWR Video Competition Seeks to Raise Awareness, Research Funds for PWS

Single, Wearable Motion Sensor Detects Trunk Instability, Poor Walking Symmetry in Study

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

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Online Survey Seeks to Assess Potential of Telemedicine for PWS

Lowest Dose of LV-101 Fares Well in Phase 3 Trial of PWS Children

New Streaming Channel Showcases Rare Disease Films

IPWSO Announces Early Results of COVID-19 Survey, Seeks More Participants

Rare Disease Communities Invited to Submit Works to 2020 Rare Artist Contest

Study Links Structural Changes in Brain to Behavioral Problems in PWS Patients

Non-invasive Method Could Help Detect Low-grade Inflammation, Study Suggests

PWS Patients With Chromosome 15 Deletions More Prone to Obesity, Study Contends

High Protein Meals Boost GLP-1 Hormone Known to Suppress Appetite in PWS Children, Study Finds

Gene’s Loss Linked to Sleep and Food Irregularities in PWS Mouse Model

Dietary Planning Helps Maintain Normal Fat Tissue Levels in PWS Children

Growth Hormone Use Beyond Childhood Aids Young Adults With PWS, Study Finds

Study Links Inflammatory Molecules to Behavior Problems in PWS Children

Improved Height, Body Composition Found in PWS Patients Treated With Growth Hormone

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Saniona Planning Phase 2b Trial of Tesomet in Controlling Hunger

DCCR Fails to Reduce Excessive Appetite But Improves Other Measures, Data Show

Lack of Vitamin D in Diet Linked to Lower Levels in PWS Patients in Study

Coalition Will Address Racial Disparities in Rare Disease Communities

Tracking Eye Movements Can Measure Chronic Desire to Overeat

Liraglutide Helped Maintain Rapid Weight Loss in Teenager With PWS

Lean Muscle Mass Factors Strongly in Bone Health, Study Using Prader Willi Patients as Model Finds

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Low Thyroid Hormone Thyroxine Levels in PWS Children Increase With Age

Lallemand, PWSA Become Running Partners to Support Fundraiser

Inversago Raises $35M to Develop Therapies for PWS, Other Disorders

Researchers Detail PWS Prenatal Diagnosis Based on Noninvasive Test

At-home Exercise May Improve Bone Health in PWS Children, Trial Shows

Gut Microbiome Differences in PWS Children Possibly Linked With Their Overeating, Study Suggests

Same But Different Photo Contest Celebrates People With Rare Diseases

FPWR Video Competition Seeks to Raise Awareness, Research Funds for PWS

Single, Wearable Motion Sensor Detects Trunk Instability, Poor Walking Symmetry in Study

Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input

EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US

Subscribe to our mailing list

Online Survey Seeks to Assess Potential of Telemedicine for PWS

Lowest Dose of LV-101 Fares Well in Phase 3 Trial of PWS Children

New Streaming Channel Showcases Rare Disease Films

IPWSO Announces Early Results of COVID-19 Survey, Seeks More Participants

Rare Disease Communities Invited to Submit Works to 2020 Rare Artist Contest

Study Links Structural Changes in Brain to Behavioral Problems in PWS Patients

Non-invasive Method Could Help Detect Low-grade Inflammation, Study Suggests

PWS Patients With Chromosome 15 Deletions More Prone to Obesity, Study Contends

High Protein Meals Boost GLP-1 Hormone Known to Suppress Appetite in PWS Children, Study Finds

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Gene’s Loss Linked to Sleep and Food Irregularities in PWS Mouse Model

Dietary Planning Helps Maintain Normal Fat Tissue Levels in PWS Children

Growth Hormone Use Beyond Childhood Aids Young Adults With PWS, Study Finds

Study Links Inflammatory Molecules to Behavior Problems in PWS Children

Improved Height, Body Composition Found in PWS Patients Treated With Growth Hormone

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Saniona Planning Phase 2b Trial of Tesomet in Controlling Hunger

DCCR Fails to Reduce Excessive Appetite But Improves Other Measures, Data Show

Lack of Vitamin D in Diet Linked to Lower Levels in PWS Patients in Study

Coalition Will Address Racial Disparities in Rare Disease Communities

Tracking Eye Movements Can Measure Chronic Desire to Overeat

Liraglutide Helped Maintain Rapid Weight Loss in Teenager With PWS

Pin It on Pinterest