My husband, Jamie, and I have developed a constantly evolving system to plan for the week ahead. Standing in the kitchen with multiple calendars open, we map out the week’s schedules and logistics. We do a pretty good job. Bonus points if we can coordinate appointments around the same time…
Discussion
People with Prader-Willi syndrome (PWS) that’s caused by a certain type of genetic mutation may experience abnormalities in how the brain processes information that make them more vulnerable to psychosis — which is more common among PWS patients than in the general population. That’s according to a new study…
Discussion
We’ve adopted a family motto: “Run your own race.” Both of our kiddos experience global developmental delay due to Prader-Willi syndrome, so my husband, Jamie, and I learned very quickly that we had to adjust expectations when it came to the typical milestone charts and timing. In…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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