August is a busy month for my family. Both of my kids have birthdays this month, one day apart. My daughter, Emerson, is turning 4, and my son, Ellis, will be 1. This year, we’re celebrating them together with a Neverland-themed party. Birthdays and holidays are like my Super Bowl,…
Discussion
A trio of advocacy groups have come together to help families understand safety risks associated with Vykat XR (diazoxide choline), an oral treatment approved to ease hyperphagia, or excessive hunger, in people with Prader-Willi syndrome (PWS). In light of new safety data reported since Vykat XR became commercially…
Discussion
The morning started like any other. We woke up to our 3-year-old daughter, Emerson, bouncing on the bed, body-slamming us, and laughing, while our 11-month-old son, Ellis, was in his bassinet, babbling and smacking his aquarium toy until it turned on. Time to start the day. I tried to sneak…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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