Last week, my husband, Jamie, and I sat in a courtroom in Alleghany County, Pennsylvania, while our 1-year-old son, Ellis, bum-shuffled across the table in front of us. As we marveled at our little guy smiling and making faces, the court reporter and staff prepared for the hearing. Then we…
Discussion
The first day of my master’s degree program in healthcare, I looked around the room and did the math: physician, more physicians, hospital administrator, physician. And then there was me, a mom whose medical training came from eight years of specialist appointments, insurance appeals, and late-night research after my son’s…
Discussion
Having predictable rules and routines around food is not only a useful management tool for people with Prader-Willi syndrome (PWS) but also absolutely central to managing hyperphagia, a hallmark symptom of the disease characterized by uncontrollable hunger…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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