Telemental health programs, which provide remote mental health services, may be a feasible and effective strategy to address mental health issues that arise for caregivers of children with rare diseases, including Prader-Willi syndrome (PWS), a U.S. study shows. In particular, the researchers noted that individual and group-based programs were…
Sleep apnea, or breathing disruptions during sleep, is common in children with Prader-Willi syndrome (PWS) and is more severe than it is in children with sleep apnea but no PWS, according to a study in China. In the PWS group, a higher body mass index (BMI), a…
Discussion
When our son, Robert, was born in 1989, we never dreamed we would still be advocating for him at age 37. I was sure I could fix whatever problems he had. I thought he would eventually have a normal life. Low muscle tone was a problem from the start. At…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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