May is Prader-Willi Syndrome (PWS) awareness month, offering families and advocates an opportunity to raise visibility, share experiences, and drive change for those affected by the disease. Through the United in Action initiative, launched by the PWS Association USA (PWSA USA), supporters are encouraged to turn everyday connections…
Researchers have developed a one-time gene therapy that may help ease obesity and related metabolic problems in people with Prader-Willi syndrome (PWS), according to a study in a mouse model of the disease. A single injection of the therapy, which uses a harmless version of the adeno-associated virus (AAV)…
A new study uses a mobile app to track the experiences of caregivers for people with Prader-Willi syndrome (PWS), with the aim of giving researchers insight into day-to-day life that could inform treatment development. “Pragmatic measurement is an important key to drug development that can provide insight into the…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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