Updates
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Despite low muscle tone, young adults with Prader-Willi syndrome can do exercises involving resistance training and likely will benefit from greater muscle strength, a ... Read more
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HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases
Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases and ensuring timely, affordable access ... Read more -
Difficulty Recognizing Facial Expressions May Contribute to Poor Social Skills for PWS Adults, Study Suggests
Adults with Prader-Willi syndrome (PWS) have difficulty recognizing facial expressions, which may contribute to their poor social skills, a study reveals. The researchers found ... Read more -
Shorter Telomeres in Young Adults with PWS May Indicate Premature Aging, Study Reports
Telomeres — a marker of cell division and lifespan — were found to be shorter in young adults with Prader-Willi syndrome (PWS) than in ... Read more -
Early Diagnosis and Treatment of PWS May Reduce Risk of Obesity, Study Suggests
Early diagnosis and treatment of Prader-Willi syndrome may delay obesity and minimize the risk for associated complications, a study suggests. The study, “Early Diagnosis ... Read more
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FDA Grants Fast Track Designation to PWS Potential Therapy LV-101
The U.S. Food and Drug Administration (FDA) has granted fast track designation to LV-101 ... -
Rare Disease Film Festival Highlights Patient and Researcher Unity
Rare disease-themed videos glowed on a large screen before an audience of people in ... -
Phase 2b/3 Trial of Livoletide Completes Enrollment of PWS Patients Ages 8 to 65
A Phase 2b/3 clinical trial of livoletide, a treatment candidate for excessive eating in ... -
Obesity and Bone Fractures in Children with PWS Tied to High Blood Levels of Protein, Study Says
Children with Prader-Willi syndrome (PWS) have high levels of a protein called LIGHT/TNFSF14, which ... -
Daily Probiotic Reduces Abdominal Fat and Insulin Resistance in Children with PWS, Study Finds
Daily consumption of a common probiotic significantly lowered the percentage of abdominal fat, improved ... -
Long-term Growth Hormone Treatment Not Linked with Increased Severity of Scoliosis in Children with PWS, Study Finds
Treatment with growth hormone for eight years led to a lower spine curvature in children ...
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Lean Muscle Mass Factors Strongly in Bone Health, Study Using Prader Willi Patients as Model Finds
News
Lean muscle mass is a strong predictor of bone mineral density, or bone health, research that used Prader-Willi syndrome (PWS) as a genetic model to determine which factors influence such density reports. In fact, lean mass was found to ... Read more