Five years of growth hormone (GH) treatment allows children with Prader-Willi syndrome (PWS) who are experiencing failure to thrive at the start of treatment to develop similar height-adjusted lean body mass, or non-fat tissue, to those without failure to thrive at GH initiation. That’s according to a study in…
Discussion
Nearly four years ago, my husband, Jamie, and I were introduced to Prader-Willi syndrome (PWS). It was a Monday evening in late September when we received an urgent email about a potential match through adoption, a 5-week-old baby girl with a PWS diagnosis. We were advised to look…
Discussion
Last Friday’s lockdown at my son’s high school brought the kind of phone call no parent wants to receive. My 16-year-old son, Jake, who’s living with Prader-Willi syndrome (PWS), called to tell me he was outside by the football field in an equipment garage, and they were under lockdown…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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