The U.S. Food and Drug Administration (FDA) has lifted the hold on late-stage clinical testing of ARD-101, an investigational oral therapy for people with Prader-Willi syndrome (PWS) and hyperphagia, an insatiable feeling of hunger. “We are pleased that the FDA has lifted the clinical hold on ARD-101, allowing…
Discussion
It’s that time of year! Colorful leaves blanket our street and sidewalks, the Midwestern air has (sort of) turned crisp, and the comfy sweaters have made their way back into our closets. Fall is taken very seriously in our home, especially spooky season. Each year, I spend a weekend in…
Discussion
An international survey found that clinicians with the most experience caring for infants with Prader-Willi syndrome (PWS) are more likely to forgo a sleep study before starting growth hormone therapy — contrary to current guidelines. For U.S. doctors, the most commonly cited reason was avoiding a delay in treatment…
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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