“1 … 2 … 3 … Go!” I take off down the sidewalk, a few yards ahead, before stopping. When I turn around, a grin spreads across my daughter’s face just before she tears off toward me. I excitedly cheer her on while her screams and giggles of excitement fill…
Discussion
Nearly 400 civic, business, and philanthropic leaders in South Florida gathered this week for a second annual event aimed at raising funds to support people with Prader-Willi syndrome (PWS) and other developmental disorders, particularly as they “transition into adulthood.” The fundraising gala was hosted by the Supreme Twins…
Discussion
Over the last few months, my husband, Jamie, and I have been preparing for our 1-year-old son, Ellis, to undergo surgery. Experts have found that cryptorchidism, or the absence of at least one testicle from the scrotum, occurs in 86% to 100% of boys with Prader-Willi syndrome (PWS).
Prader-Will syndrome is a rare and complex genetic condition that results in a variety of physical and mental symptoms. Learn more about the disease here.
Prader-Willi is caused by genetic changes in a particular area of chromosome 15. Learn more about what causes the disease here.
Symptoms of Prader-Willi range from physical impairments to cognitive and behavioral issues. Learn more about the symptoms of the disease here.
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