FPWR Video Competition Seeks to Raise Awareness, Research Funds for PWS

FPWR Video Competition Seeks to Raise Awareness, Research Funds for PWS
0
(0)

The Foundation for Prader-Willi Research (FPWR) is hosting a video competition to help spread awareness of Prader-Willi syndrome (PWS) and raise funds for research.

The FPWR is seeking inspiring stories from the PWS community in the form of short videos, of one-to-five minutes in length. Possible categories include “Inspiration,” “PWS Education/Awareness,” and “Fundraising for PWS Research.”

The award categories are “The Popular Choice,” “The Blockbuster,” and “The FPWR Favorite.” The winner in each category will receive free registration to the 2021 FPWR Family Conference, valued at $225.

The video that receives the highest number of views will win the popular choice prize. The blockbuster award will go to the video that receives the most “votes,” as measured in terms of fundraising. Each dollar raised counts as one vote. Each video will have a donation page to collect votes, and participants are asked to share those pages during the voting period.

The FPWR Favorite will be selected by the foundation’s own team.

Submissions are open now and will close at midnight on Sept. 25. Voting will run from Oct. 5 through 14, ending at 3 p.m. PT.

Videos entered in the competition may be used in future foundation promotions to help spread awareness and educate others about PWS and to gather funding for research. The foundation also hopes to use the videos to help improve the well-being of those with the genetic disease.

The FPWR helps fund several projects, including basic research and clinical trials, and features a grant program open twice a year.

To shoot the videos using a smartphone, the foundation suggests holding the device horizontally for the best effect. Other tips are offered on the video competition website, to include advice on how to minimize sound interference, optimize lighting, and ensure a steady image.

Any music used in the videos must either be royalty-free or have permission for use from the owner(s), the FPWR said.

The foundation’s website also offers several examples of past videos to help inspire participants. These examples include tributes to the challenges and joys of raising children with PWS, one family’s personal fundraising challenge, and the advice that parents would give themselves if they could revisit the moment they learned of their child’s diagnosis.

Contest participants must be 18 years or older and have permission to feature all of the people who appear in their video.

Go here to find an entry form.

Forest Ray received his PhD in systems biology from Columbia University, where he developed tools to match drug side effects to other diseases. He has since worked as a journalist and science writer, covering topics from rare diseases to the intersection between environmental science and social justice. He currently lives in Long Beach, California.
Total Posts: 12

José holds a PhD in Neuroscience from Universidade of Porto, in Portugal. He has also studied Biochemistry at Universidade do Porto and was a postdoctoral associate at Weill Cornell Medicine, in New York, and at The University of Western Ontario in London, Ontario, Canada. His work has ranged from the association of central cardiovascular and pain control to the neurobiological basis of hypertension, and the molecular pathways driving Alzheimer’s disease.

×
Forest Ray received his PhD in systems biology from Columbia University, where he developed tools to match drug side effects to other diseases. He has since worked as a journalist and science writer, covering topics from rare diseases to the intersection between environmental science and social justice. He currently lives in Long Beach, California.
Latest Posts
  • Video Competition
  • LV-101
  • COVID-19, survey

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?