With each new advance in medicine comes ethical dilemmas, from fertility treatments and newborn screening, to vaccinations, gene therapies and…
Articles by Larry Luxner
The world’s biggest gathering of rare disease researchers, patient groups, pharmaceutical executives, and government officials is planned for April 10–12…
About 100 scientists, researchers, pharmaceutical executives, and others will converge on Austria’s capital city early next month for the…
G71.01 is, literally, the code for Duchenne muscular dystrophy.  Q93.51 stands for Angelman syndrome, and G40.419 covers generalized…
Cash-strapped governments across the 28-member European Union are struggling to control runaway healthcare expenditures — at exactly the same time…
With the U.S. midterm elections now less than two weeks away, patient advocacy groups are solidly focused on a range…
Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced to seven years in federal prison…
More than 700 medical experts, pharmaceutical executives, patient advocates, and others are expected to converge on Washington, D.C., next month…
As President Trump signed the recently passed Right to Try legislation into law in a White House ceremony, Jordan McLinn…
Finding treatments and potential cures for rare diseases is crucial, but so is the quality of patients’ lives — a…