The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
Articles by Mary Chapman
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in the rare disease…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The…
The upcoming Research Symposium and Family Conference, hosted by the Foundation for Prader-Willi Research (FPWR), will offer the latest in…
Scores of events are afoot worldwide to mark Feb. 28, Rare Disease Day 2019. The activities aim to raise awareness about…
Liza Zickefoose has six children. As if that’s not challenging enough, one of them, Bridgette Nicole Johnston, has Prader-Willi…
Two nonprofit organizations are backing an extensive pilot screening study in Australia for four rare genetic disorders, including Prader-Willi…
This year’s Prader-Willi California Foundation (PWCF) Annual State Conference will focus on educating families, caregivers, and professionals about the…