Four organizations have joined efforts to fund the addition of Prader-Willi syndrome, Angelman syndrome, and Dup15q syndrome to the…
Articles by Patricia Inácio, PhD
The Prader-Willi Syndrome Association (PWSA) USA has earned a Patients at the Heart award from Harmony Biosciences.
A new research project in Australia is investigating what underlies sleep-disordered breathing — an umbrella term for abnormal breathing patterns…
The first healthy volunteers were dosed in a Phase 1 clinical trial evaluating Inversago Pharma‘s INV-102, a potential therapy…
The mean total annual costs of raising a child with Prader-Willi Syndrome (PWS) — an estimate that takes into…
The Foundation for Prader-Willi Research (FPWR) has partnered with My Gene Counsel to safely and responsibly return genetic test…
Ahead of this year’s Rare Disease Week on Capitol Hill, held virtually July 14–22, the EveryLife Foundation will…
Lockdown during the COVID‐19 pandemic led to weight reduction among half of adults with Prader-Willy syndrome (PWS) in…
The Foundation for Prader-Willi Research (FPWR) is launching the first Prader-Willi syndrome (PWS) Genome Project, it announced. This project…
In interviews, most caregivers of people with Prader-Willi syndrome (PWS) reported an easing in patients’ behavioral symptoms after 13…