Four years ago, my husband, Jamie, and I had never heard of Prader-Willi syndrome (PWS). We didn’t know it…
Trevor Dykes
Trevor (he/him) lives in Columbus, Ohio, with his husband and their two children, Emerson and Ellis; both live with Prader-Willi syndrome, and one is on the autism spectrum. A tenured corporate strategist, Trevor writes from the intersection of professional storytelling and the daily reality of rare disease caregiving. As an adoptive parent and caregiver advocate, he finds joy in supporting prospective adoptive parents, advising on LGBTQ+ inclusion, and bringing awareness through lived experience.
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