Vijaya Iyer, PhD,  —

Long-term exercise improves physical performance in patients with Prader-Willi syndrome (PWS), but immediate physiological response post-exercise appears unfavorable, a review of published studies shows. The study, “Physical exercise and Prader-Willi syndrome: A systematic review.” was published in the journal Clinical Endocrinology. PWS is associated with abnormal body composition and…

Involuntary reflexes such as being startled are abnormal in Prader-Willi Syndrome (PWS) patients, and lower startle response to food images may explain their eating habits, researchers from the University of Kansas Medical Center report. The study, “Startle Response Analysis of Food-image Processing in Prader-Willi Syndrome” was published in…

Feeding Tube Awareness Week (FTAW) — taking place Feb. 3-9 — is held worldwide to provide information about tube feeding and access to support groups and resources to patients and their families. In Australia, the national charity organization ausEE will be promoting the FTAW awareness campaign. “This week…

Lean muscle mass is a strong predictor of bone mineral density, or bone health, research that used Prader-Willi syndrome (PWS) as a genetic model to determine which factors influence such density reports. In fact, lean mass was found to be a more important factor than overall weight, age or sex.

Discontinuation of growth hormone (GH) therapy in adult Prader-Willi syndrome (PWS) patients causes accumulation of abdominal fat and increases levels of bad cholesterol, researchers in Japan report. The study, “Visceral adipose tissue increases shortly after the cessation of GH therapy in adults with Prader-Willi syndrome” was published…

Children with Prader-Willi syndrome (PWS) as young as 4 are now eligible to participate in the ongoing Phase 3 trial testing diazoxide choline controlled-release (DCCR) tablets for PWS initiated by Soleno Therapeutics earlier this year. The original minimum age limit for enrollment was 8. Feedback from the U.S. Food…