Scoliosis is common among people with Prader-Willi syndrome (PWS). I am active in the PWS community and have seen multiple people with the syndrome whose bodies were severely compromised by scoliosis, or an abnormal curvature of the spine. In my experience, older people with PWS and scoliosis often…
Choosing Happiness - a Column by Janet Favorite
While I was shopping with my grandson, he spotted a ball in the next aisle. Since we’d experienced incidents of balls thrown at other shoppers, I didn’t want a repeat. “No ball!” I said. That provoked a tantrum. Throwing himself on the floor, my grandson began to scream and cry.
I’m a woman of a certain age, and self-care was never mentioned in my younger years. Today, thankfully, there’s considerably more information about this important concept, and we women should take note. After all, we typically have two jobs: working outside the home and handling the bulk of a home’s…
We all have struggles in our lives, some more than others. As an older mother, wife, and grandma (known as “G-Honey”), I can’t believe the beautiful life I’ve been given. My younger years were filled with chaos. Both of my parents were alcoholics and many surrounding relatives used one substance…
Recent Posts
- Avoiding meltdowns during the holidays with Prader-Willi syndrome
- PWS patients see weight loss, less hunger with setmelanotide in trial
- Eye-tracking test adapted to better measure hunger behaviors in PWS
- We struggled to find mental health support for our son with PWS
- How Prader-Willi families can enjoy the holiday season
- Diabetes medications may support kidney health in adults with PWS
- How parenting and caregiving have changed since we began
- Siblings of PWS patients require tailored support as they grow up
- Can BMB-105 ease insatiable hunger? PWS program to find out.
- My son’s first PWS camping trip was a success