• ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy
  • Exercise Improves Fitness in PWS Patients, Review Study Shows
  • New Guidelines for PWS Treatment Implemented at Tennessee Clinic
  • First-round Winners Announced for Foundation’s 2019 Prader-Willi Research Awards
  • Two Grants Will Advance Research for ‘Waking’ Healthy Genes in Prader-Willi Syndrome
  • Saniona Creates Advisory Board to Advance Development of Tesomet for PWS
  • Millendo Presents Phase 2b/3 Trial Overview of Livoletide, Potential PWS Therapy, at European Congress
  • Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries
  • Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns
  • Nonprofit Group Works to Raise Rare Disease Awareness in India
  • At-Home Dialysis Can Manage Kidney Disease in Prader-Willi Patients, Case Report Shows
  • Study Outlines Rare Case of PWS Patient with Ear Canal and Bone Infection